Media Blitz.
HEY GUYS IT’S SUPER LATE AND I’M THE ONLY ONE AWAKE ALSO LOOK: CAPS IT’S GONNA BE ONE OF THOSE ENTRIES BUCKLE UP OKAY SO IT’S FATHER’S DAY FOR ONE MORE MINUTE AND OURS WAS AWESOME WE WENT TO GO…
Best of times, worst of times.
You’ll have to forgive me: I’m a little bit rusty. It’s been weeks and weeks– maybe even months– since I really sat down to write an entry. I used to do this all the time. I mean, daily. Now, the…
Up.
My mom’s been telling me that I need to write an entry. She mentioned it when she was in town last month, then on the phone a week ago, then in an email yesterday. I miss your updates! I check…
Decade.
Everyone got home from school today, and we’re hanging out, talking, coloring, what have you, and I’m all, It’s almost dinnertime and I don’t want to cook so let’s EAT OUT! Both kids are enthusiastic. I’ve been talking up this…
The Body Electric.
Hey. So. A few days ago, I posted a small update on Twitter and Facebook, giving the short version of a three hour visit at Duke: if Addie’s new medication doesn’t work, they want to consider neurosurgery. I took the…
The end of paralysis.
Addie had a seizure a few minutes ago. It was short: five, ten seconds. I was putting clean sheets on Eli’s bunk bed, talking to both of them about how wonderful they were tonight. And they were: unbearably, unbelievably wonderful….
Flesh and Blood.
I’m so ridiculously tired and I’m gonna type this up anyway, because I’m a bad blogger and want to get better, and the only way to get better is to just MAKE MYSELF DO IT. Nine nights out of ten,…
All happy families are alike.
“Just stay in your side of the bed,” I admonish, “and don’t kick.” “She always kicks me. She always kicks her feet.” “I do not!” “You always get annoyed and kick me–” “I DO NOT–” “Do you two want to…
Human Beings in the Wild.
Jason called this afternoon and was all, So, how’s that entry coming? and I admitted, IT’S NOT. I’ve been trying to write this for six days, and honestly, I think the problem is that when something happens I need to talk about…
Schizencephaly.
I’m spoiling it for you. I’m jumping to the end of the episode, thumbing to the last page of the book where everything comes together and the culprit is revealed: it’s schizencephaly. That’s where I left you, late last year….
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